26 10, 2011

The Bridge Concert

By |October 26th, 2011|Autism, Life, Parenting|1 Comment|

The Bridge Concert is an annual benefit concert put on by the singer Neil Young and his wife Pegi just outside San Francisco. It started 25 years ago to help fund a special needs school for their severely disabled son http://bridgeschool.org/concert/index.php .

My husband started attending this benefit concert many years ago with his buddies. There are more details in his bio http://www.mycrazylifeunplugged.com/my-co-captain/. When we were dating he took me for the first time. It was our first road trip together and it was where we fell in love. We spent some time in San Francisco on the wharf, visiting Alcatraz and The Golden Gate Bridge. Then on Saturday afternoon we went to the concert. It’s held at the Shoreline Amphitheater in Mountain View California. It’s an outside venue so we brought our blankets and got comfortable on the lawn. One of my favorite things to do is attend outdoor concerts. There’s nothing better for me than to listen to music outside  in nature with God’s creations all around. I love it and on that brisk day in September of 2002 I found out that the guy I was spending time with loved it too! It was all very exciting.

The outdoor concert coupled with the whole idea of helping the disabled children that were seated on the stage behind the performers made for a pretty amazing night! I was moved multiple times as the music poured out into the air and into my soul.  Foo Fighters, Jack Johnson, Neil Young, Thom Yorke, Tenacious D, James Taylor, Ryan Adams, Vanessa Carlton, and Leann Rimes entertained us that night.

We attended the concert together for many years after that. In 2006 we went even though Chris had to give me a hormone shot right out on the lawn because we were in our cycle of In Vitro Fertilization and I had to get the shot at the same time every night. A little shot didn’t stop us from attending this event that had become a tradition (Don’t worry, it was dark and we were discreet).

After Bridger was born our Bridge Concert attendance slowed down. We’ve been only once since 2006, until last weekend that is. We did it! Even though it’s so hard to leave the kids, even though we really shouldn’t have spent the money, even though Chris couldn’t get off work on Friday…we went!!!

We jumped in the car on Friday late afternoon and hit the road like a couple of college kids:) We slept for a few hours at my aunt and uncle’s home in Reno Friday night and drove the rest of the way to San Francisco on Saturday morning. We got some lunch, clam chowder bowls at Boudin’s. Then we picked up sandwiches and headed to the concert.

It was sold out. 22,000 people I think they said were there! I was just so full of emotion to know that all those people were there for a cause. A cause that is so close to my heart these days. Hearing Pegi Young talk about her special needs son just resonated with me. Heart to heart, mom to mom. She gets it. She knows.Her journey is similar to my  journey with my autistic little boy and this is the first time we have attended the concert since our Bridger was diagnosed with autism. The night was powerful and hopeful and so wonderful. Eddie Vedder was my favorite of the night. I always love Neil Young. Beck was another favorite (Chris and I listened to him a lot when we were dating), Dave Mathews was good too. I really love every year when all the artists come out and sing the last song together. Love it! My heart soared as the crowd sang along with the artists “C’mon people now, Smile on your brother, Ev’rybody get together,Try and love one another right now”…

After the concert we crashed at a hotel with some friends who met us out there to attend the concert then we woke bright and early and very tired to drive the 12 hours home to our babies (and our worn out sister in law who is AMAZING for taking care of them while we were gone and for so many other reasons too)!

My husband posted this link from the concert on his Facebook and said that the lyrics remind him of his own special needs son.

I’m a lucky girl for so many reasons.

“And from afar, I lie awake. Close my eyes to find I wouldn’t be the same. I’ll shine when you shine, Painted pictures on my mind, Sun sets on this ocean, Never once on my devotion. However you are, Or far that you’re far…I’ll keep on healing all the scars, That we’ve collected from the start, I’d rather this than live without you, For every wish upon a star,That goes unanswered in the dark, There is a dream, I’ve dreamt about you…”—Eddie Vedder

24 10, 2011

Another crappy blow…wait make that 2!!!!

By |October 24th, 2011|Autism, Life|0 Comments|

I just got a call from the Unitedhealthcare Children’s Foundation http://www.uhccf.org/. We applied for a grant with them last year and to our amazement got it! It’s only a drop in the bucket compared to the overall amount we have to pay for Bridger’s autism treatment but hey, every little bit helps.

Last week I frantically jumped through the hoops and reapplied for the grant since our year is up and we are eligible again. I had to wait until all the money was used so I couldn’t apply sooner but the minute it was gone I got the letter from Bridger’s doctor, copies of tax documents and insurance denials and sent them on their way with high hopes. Well, today my hopes were dashed when a lady with a mechanical voice told me we can’t apply until December 1st. I cried and explained that we were counting on this money and in return she explained that I must have read the website incorrectly because we aren’t eligible until December.

Great, that phone call means that right at Christmastime we will be trying to come up with a couple extra thousand dollars or else we’ll have to pull our child out of his program. Lovely. Since I sent it in too early I have to fill out the WHOLE application again and resend the paperwork. They won’t just hold onto it until December. It could take up to 6 weeks to get it approved after that. Nice. Happy Holidays to you too United Healthcare Children’s Foundation!

I just finished writing the above when the mail came. It contained MORE bad news. Our appeal to our insurance has been DENIED. They are upholding their decision not to pay for Bridger’s autism treatment. Of course they make sure it is clear that “This determination does not mean that your child did not require additional health care…” He needs it but they just won’t pay for it. IS THAT CLEAR??? Ugh! If I swore I would be using some colorful words right now! Grrr…

“Because you had a bad day, you’re taking one down. You sing a sad song just to turn it around. You say you don’t know, you tell me don’t lie, you work at a smile and you go for a ride. You had a bad day, the camera don’t lie, you’re coming back down and you really don’t mind. You had a bad day, you had a bad day”—Daniel Powder

20 10, 2011

Happy Birthday Noah!

By |October 20th, 2011|Life, Parenting|0 Comments|

On October 22, 2008 Noah was born. He is the caboose of the Fry Family Train. My favorite thing that he says is “Momma, you wanna snuggle me?” My least favorite thing he says is “NO WAY!!!!” In spite of his Dr. Jeckyl/Mr. Hyde three year old personality, I couldn’t love him anymore than I do. He truly lights up my life, in a way that only my little Noah can…

 

“They didn’t have you where I come from. Never knew the best was yet to come. Life began when I saw your face, and I hear your laugh like a serenade.

How long do you want to be loved? Is forever enough, is forever enough? How long do you want to be loved? Is forever enough? Cause I’m never, never giving you up”–Dixie Chicks

 

 

 

 

18 10, 2011

If Only…

By |October 18th, 2011|Life|0 Comments|

I’ll be honest, I never apply for Publisher’s Clearinghouse Sweepstakes, I never play the lottery, and I never even pick up the Monopoly Game Board at McDonald’s so WHY do I still rip off the little game pieces with a tinge of hope that I will win a MILLION dollars????? Lol. Every time, I hold my breath a little as I wait to see if the unthinkable will happen and of course it never does…HA!!!

“If I had a million dollars (If I had a million dollars). Well, I’d buy you a fur coat (But not a real fur coat that’s cruel). And if I had a million dollars (If I had a million dollars) Well, I’d buy you an exotic pet (Yep, like a llama or an emu)…”—BareNaked Ladies

17 10, 2011

Our Own Hero

By |October 17th, 2011|Life|0 Comments|

Every Sunday night is a family night at our house and this last one was extra special. Seven months into Chris’ brother’s deployment to Afghanistan, we FINALLY put together a box to send to him! This procrastination is in no way a reflection of how much we love this guy, or think about him, or talk about him! The kiddos love, love, love their Uncle Steve!

We all picked our favorite treat to send in the box (well, one that could be shipped, which actually posed a little problem for me because chocolate or Diet Coke cannot be mailed and those are my only choices). I’m sure Steve will be intrigued by the random assortment of treats that we’re sending across the world, in a box, just for him. We glued a little heart on each one with our name to identify which favorite belongs to us.

The best part will undoubtedly be the letters from our sweet girls to their uncle. Sydney said “The most used word in my letter is LOVE”. I don’t doubt it… 

Noah and I went to the post office this morning and sent it off! So, here it comes Steve! Finally! Get excited! I hope it doesn’t take too long to get to you.  We really love you and are so proud of you! Hurry home and come see us for the holidays!!!!

“I’m an American soldier, an American
beside my brothers and my sisters I will proudly take a stand. When Liberty’s in jeopardy, I will always do what’s right. I’m out here on the front line sleep’in in peace at night. American soldier, I’m an American soldier.”–Toby Keith